Site Description
Ace Advisory Trust Aiding communication in education.
AFASIC AFASIC provides information, help and advice to families of children with speech and language impairments and is a membership organisation.
ASBAH Aims to improve services for people with spina bifida and/or hydrocephalus, to extend their choices and maximise their opportunities for independence through network of field advisers, specialists in mobility, education, etc.
Birth Defects Foundation The BDF is a UK registered charity whose mission is to improve child health, aid families and create awareness. BDF is committed to funding basic clinical and ethically approved research into causes, prevention and treatment of birth defects. BDF's here to help service provides a professional and confidential service offering support to those affected by, at risk of, or concerned about birth defects.
British Stammering Association Offer information and support to all whose lives are affected by stammering. Hold a database of local speech and language therapy services. Distribute free information packs.
Carers UK Carers UK is a campaigning organisation. We provide information and advice on all aspects of caring to both carers and professionals. Carers Line is a free advice line for carers staffed by welfare rights, community care and benefits experts and answers over 22,000 carers' enquiries each year.
CENMAC Assessment and support of children whose educational progress is hindered by their physical inability to communicate effectively in speech or writing. Loans appropriate technological aids.
CHASE - Children's Hospice Service CHASE is a very special children's hospice service, dedicated to the support of children who are not expected to reach their 19th birthday. It offers care and support for the children and their families. This vital service is available at no cost to the families 24 hours a day, every day of the year, in whatever way it is needed, emotionally or practically.
Child Growth Foundation An 'umbrella' organisation - parent/patient support for children with growth disorders incorporating the UK Turner Syndrome Society/Bone Dysplasia Group/IUGR Russell Silver Syndrome/Growth Hormone Insufficiency/SOTOS Syndrome and PSM.
Children's Legal Centre The Children's Legal Centre is a unique, independent national charity concerned with law and policy affecting children and young people. The Centre opened in 1981 as the major UK project for the International Year of the Child, and is staffed by barristers, solicitors and professionals with expertise in child law.
Citizens Advice The Citizens Advice Bureau Service offers free, confidential, impartial and independent advice.
CLIMB Climb offers advice, information and support to carers and professionals associated with metabolic disease.
Contact A Family Provides help and advice for families caring for children with any type of disability or illness; aims to link families together and encourage mutual support between parents/carers; has contact names/addresses of specific syndrome groups and local self help groups.
Council For Disabled Children The Council for Disabled Children is an independently elected, multidisciplinary consortium operating under the aegis of the National Children's Bureau.
DELTA DELTA is a nationwide support group of teachers and parents/carers of deaf children, providing support, information and advice to guide parents/carers in helping their children develop normal speech and to live independently within a hearing society. There are regional branches which hold regular meetings and events DELTA also runs conferences and courses for professionals, parents/carers and families, including summer schools for parents/carers with hearing-impaired children - while the children enjoy themselves, their parents/carers attend lectures, workshops and discussion groups.
Diabetes UK National charity supported by regional groups; also provides regional events and projects for children with diabetes and their parents/carers.
Dial UK DIAL UK is the national organisation for the DIAL network - 140 Disability advice centres run by and for people with disabilities. DIALs give free, independent advice on all aspects of disability over the telephone and in drop-in centres: many can arrange to visit less mobile clients in their own homes. As the national organisation for the Network, DIAL UK promotes the interests and usage of disability advice centres controlled by disabled people and provides information and support services to DIALs and to other disability information providers.
Disability Alliance Disability Alliance is committed to breaking the link between poverty and disability by providing information to disabled people about their entitlements and campaigning for improvements to the social security system and for increases in disability benefits so that they better reflect the real costs of disability.
Disability Challengers Disability Challengers provides essential leisure, play and learning experiences for young people with any kind of physical, learning or emotional impairment.
Disabled Living Foundation DLF is a national charity that provides information and advice on disability equipment to help solve the day to day problems that arise through living with a disability.
Disabled Parents Network Disabled Parents Network (DPN) is a national organisation of and for disabled people who are parents or who hope to become parents, and their families, friends and supporters.
Disability Rights Commission The Disability Rights Commission (DRC) is an independent body, established by Act of Parliament to eliminate discrimination against disabled people and promote equality of opportunity.
Down's Syndrome Association Provides information support and advice on all aspects of the condition.
Dyslexia Institute Carry out assessments, teaching and teacher training. Dedicated to successful learning for dyslexic people. Information and advice available.
Dyspraxia Foundation Offers advice, information, support, professional and parental conferences and much more.
Eating Disorders Association Support and information for people suffering from anorexia, bulimia and their families. Membership, information and local help, including self help groups.
Employment Opportunities For People With Disabilities As UK charity working directly with people with a wide range of disabilities to help them find and retain work. Employment Opportunities seeks to persuade others to positively recognise ability and potential. We have a network of Regional centres offering practical help with training and advice on job searches, CVs, application forms and interviews. Many of Employment Opportunities' staff have personal experience of disability in employment. Work closely with employers, the Employment Service and other charities. Also offer advice and support to the business sector.
Encephalitis Support Group Encephalitis Support Group is a national charity established in 1994, in response to the overwhelming lack of information on encephalitis for people affected by the condition and their need for mutual support in coming to terms with its consequences.
Erb's Palsy Group Support group offering advice and support to families affected by Erb's Palsy.
The Family Fund Trust The purpose of Family Fund Trust is to ease the stress on families who care for severely disabled children under 16, by providing grants and information related to the care of the child. The Trust is an independent organisation registered as a charity and funded by the government administrations of England, Northern Ireland, Scotland and Wales. Grants given include washing machines, holidays, leisure activities, driving lessons, bedding, clothing and other items related to the care of the child.
4 You This is the beta site for the new 4YOU search engine. 4YOU provides useful information about clubs, voluntary groups, out of school provisions and more within Hillingdon and nationally.

 

Gingerbread Gingerbread is the leading support organisation for lone parent families in England and Wales, UK.
Headway - The Brain Injury Association Headway exists to promote understanding of all aspects of head injury and to provide information, support and services to people with head injury, their families and carers. There are over 110 local groups around the UK. Over 50 run Headway House day care centres. Contact details of the local groups are available from Central Office where we can also provide straightforward information on many aspects of head injury.
Helen Arkell Dyslexia Centre Consultations, assessments, specialist tuition, speech and language therapy, support of adults, other support services, computer services, services to schools, professional development for teachers, conferences, courses for students, library and resources, bookshop and mail order, bursaries.
Hemihelp HemiHelp supports young adults/children with hemiplegia and their families. Free membership for families and professionals. HemiHelp runs a telephone helpline, produces factsheets and newsletters, runs workshops and activity days and has produced an informative and entertaining video for 8-14 year olds.
Hillingdon Community The Hillingdon Community wide web site was created to provide a single point of contact to the public to access information about local services, and to facilitate public participation in the design and running of local services. In order to address the need for detail information the Hillingdon Community wide web site will closely be linked to the partner organisations web sites.

Home-Start A course of preparation is provided in-house to all Home-Start volunteers before they are matched with a family.
Huntington's Disease Association Founded in 1971 with aims of promoting research, relief and treatment; disseminating knowledge about the disease; providing information, comfort and support (including financial support when appropriate) to families and associated professionals.
Hyperactive Children's Support Group Offers, information and support to parents/carers and professionals who have concerns for a child or children they consider to be hyperactive, ADD/ADHD, autistic, Allergic and Dyslexic. Offer non-drug approaches.
I-CAN I-CAN is the national educational charity for children with speech and language difficulties.
Irlen Centre Kent Irlen Syndrome is a perceptual disorder that affects 12% of the general population but up to 50% of those with dyslexia, ADD, ADHD, ASD and learning difficulties; Irlen Syndrome causes perceptual distortions of print and the environment, light sensitivity, eyestrain, headaches, migraine, depth perception difficulties; it is treated with precision tinted filters worn as glasses; the colours are specific to each individual and are determined following a detailed and thorough diagnostic assessment of the symptoms and of the colours needed; there is a wealth of research including double blind masked placebo controlled studies showing the efficacy of the Irlen Method.
IPSEA Independent Panel for Special Education Advice
IPSEA is a volunteer-based organisation and many of the volunteers providing telephone advice and support at Tribunals are themselves parents of children with special educational needs who have been helped by IPSEA in the past.
Jigsaw Trust An ABA school for autistic children. The trust is the charity supporting and running the school.
Let's Face It International mutual help organisation dealing with facial disfigurement; dedicated to helping those who are facially disfigured, their family and professionals who care for them; to understand and solve problems of living with this disability.
Leukaemia Care Society Leukaemia CARE was initially founded by a group of parents/carers whose children had suffered from leukaemia. In addition to the support and friendship this created, they also wished to extend this to other leukaemia patients and sufferers in a similar position. Membership was extended to include adults and their families in order to provide a better service to patients including those suffering from allied blood disorders.
London Borough of Hillingdon This is the official site of the London Borough of Hillingdon.
London SEN Mediation We aim to settle disagreements that arise between parents and local education authorities / schools about the special educational needs of children and how best to meet these needs.
The M.E. Association The ME Association supports and informs all people involved with and interested in myalgic encephalopathy.
The Mental Health Foundation The Mental Health Foundation, incorporating the Foundation for People with Learning Disabilities, is the UK's leading charity working for the needs of people with mental health problems and those with learning disabilities.
Motability Motability is a registered UK charity, which helps disabled people become more mobile. They help disabled people use their Higher Rate Mobility Component of their Disability Living Allowance (DLA) or War Pensioners' Mobility Supplement (WPMS) to lease or buy a car or buy a powered wheelchair or scooter.
Multikulti Information, advice, guidance and learning materials in different languages.
Muscular Dystrophy Campaign Funds research into treatments and cures for the muscular dystrophies and allied muscle wasting conditions. Supports adults and children affected with expert clinical care, counselling and grants towards equipment.
National Association For Gifted Children No description
National Association For The Education Of Sick Children 12 week course OCR accreditation as on-line tutor (approx. 30 hours study).
National Association Of Toy & Leisure Libraries Toy libraries loan carefully chosen, good quality toys to families with young children; some provide special toys and equipment for children with special needs; a befriending, supportive service to parents/carers and other carers. For list of publications please contact above.
National Asthma Campaign The National Asthma Campaign is the independent UK charity dedicated to conquering asthma. It funds asthma research, offers help and advice and campaigns for a better deal for people with asthma.
The National Autistic Society The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs. It has developed a range of educational and support services; runs schools and adult centres; offers families and carers information, advice and support; works to improve awareness of autism; offers a diagnostic and assessment service and provides training and promotes research.
NCH Action for Children NCH improves the lives of the UK's most vulnerable children and young people by offering them diverse, innovative and responsive services and by campaigning for change.
National Blind Children's Society Our mission is to help blind and partially sighted children and young peole to achieve their recriational and educational goals.
National Deaf Children's Society The NDCS is an organisation of families, parents/carers and carers which exists to enable deaf children and young people to maximise their skills and abilities and works to facilitate this process by every possible means.
National Portage Association National Portage Association aims to work with families to help them develop a quality of life and experience for themselves and their young children in which they can learn together, play together, participate and be included in their community in their own right.
National Pyramid Trust For Children The National Pyramid Trust offers a screening process for use in primary schools to identify children with emotional and social problems. Suitable children then attend an after school club run by trained volunteers.
Network 81 Network 81 offers practical help and support to parents/carers throughout all stages of assessment and statementing as outlined in the Education Act 1996. Our national helpline offers and individual service linked to a national network of local contacts. We can also offer advice and information on the organisation of assessment in schools and give guidelines on how to choose a school.
The Parent Centre The Parent Centre is for all parents and carers who want to help their child or children to learn. It is here to offer you support, information and advice about your child's learning and the English education system.
Parents For Inclusion parents/carers helping parents/carers so that their disabled children can learn, make friends and have a voice in ordinary school and throughout life. Aims to help parents/carers whose children are said to have special educational needs to get the support their children need in mainstream schools.
Parents At Work Campaigns to help parents/carers, children and employers by helping parents/carers combine their work commitments and home responsibilities.
Prader-Willi Syndrome Association Offers practical advice and help to carers of those with Prader-Willi Syndrome and people with PWS.
Queen Elizabeths Foundation
Disability Information Services
Free, confidential, independent information service on all aspects of disability for disabled people, their carers and service providers, aimed particularly at those living and working in Hillingdon. Covers all disabilities and age groups.
RADAR RADAR Radar promotes the equality of rights and obligations throughout society. It works to enable people with any disability to control their own lives and enjoy to the full the opportunities which society, the economy and the environment provide.
Rathbone Special Education Advice Line National helpline offering advice and support to parents/carers with children with special educational needs, helping them gain for their children an education appropriate to their potential. Areas of help: school admissions, school stages, statementing (and statement analysis), tribunals and appeals, bullying.
RNID The Royal National Institute for Deaf People (RNID) is the largest charity representing the 8.7 million deaf and hard of hearing people in the UK. As a membership charity, we aim to achieve a radically better quality of life for deaf and hard of hearing people. We do this by campaigning and lobbying vigorously, by raising awareness of deafness and hearing loss, by providing services and through social medical and technical research.
Scoliosis Association UK An independent national support group which provides information on scoliosis and contacts for parents/carers of children who have scoliosis.
SCOPE Scope is a national disability organisation whose focus is people with cerebral palsy. Scope's aim is that disabled people achieve equality: a society in which they are involved, and have the same human and civil rights, as everyone else. Local priorities: enquiry service offering advice and support to individuals and organisations.
SKILL Works to develop opportunities in post-16 education and training for people with any type of disability.
Special Educational Needs and Disability Tribunal Parents whose children have special educational needs can appeal to the Special Educational Needs & Disability Tribunal against decisions made by local education authorities (LEAs) in England and Wales about their children's education.

Teachernet DfES special needs guides in other languages - Bengali, Chinese, Gujerat, Greek, Hindi, Punjabi, turkish, Urdu and Vietnamese. Arabic, Kurdish and Somali
versions are available as downloads.
The Children's Society The Children's Society works with and for children to help them deal with life's harshest challenges and face the future with confidence.
The Sunflower Trust The Sunflower Trust provides a unique approach to improve the health, success, performance and self-esteem of children with learning difficulties.
Tuberous Sclerosis Association Supports people with tuberous sclerosis and their families or carers. Promotes education, publicity and information to increase awareness and understanding. Encourages and sponsors research into the causes and management of tuberous sclerosis.
Twins And Multiple Births Association The Twins and Multiple Births Association (Tamba) aims to provide information and mutual support networks for families of twins, triplets and more highlighting their unique needs to all involved with their care.
UK Thalassaemia Society Aims and objectives of the society: The relief of persons suffering from Thalassaemia. The promotion and co-ordination of research in connection with Thalassaemia. To educate people on the problems of Thalassaemia. Lectures with the aid of slides and/or video films in order to explain Thalassaemia in simple language to any group of people who wish to learn about it. To offer counselling to sufferers and carriers. To bring together patients, families and well-wishers to exchange ideas and information. To raise by any legal means the funds required for the above activities. Organisation of dinner/dances, sponsored activities, jumble sales, auctions, etc. Also receive donations from private individuals.
Youngminds Young Minds is the national charity committed to improving the mental health of all children and young people.