communication in education.
provides information, help and advice to families of children
with speech and language impairments and is a membership organisation.
to improve services for people with spina bifida and/or hydrocephalus,
to extend their choices and maximise their opportunities for
independence through network of field advisers, specialists
in mobility, education, etc.
BDF is a UK registered charity whose mission is to improve child
health, aid families and create awareness. BDF is committed
to funding basic clinical and ethically approved research into
causes, prevention and treatment of birth defects. BDF's here
to help service provides a professional and confidential service
offering support to those affected by, at risk of, or concerned
about birth defects.
information and support to all whose lives are affected by stammering.
Hold a database of local speech and language therapy services.
Distribute free information packs.
UK is a campaigning organisation. We provide information and
advice on all aspects of caring to both carers and professionals.
Carers Line is a free advice line for carers staffed by welfare
rights, community care and benefits experts and answers over
22,000 carers' enquiries each year.
and support of children whose educational progress is hindered
by their physical inability to communicate effectively in speech
or writing. Loans appropriate technological aids.
- Children's Hospice Service
is a very special children's hospice service, dedicated to the
support of children who are not expected to reach their 19th
birthday. It offers care and support for the children and their
families. This vital service is available at no cost to the
families 24 hours a day, every day of the year, in whatever
way it is needed, emotionally or practically.
'umbrella' organisation - parent/patient support for children
with growth disorders incorporating the UK Turner Syndrome Society/Bone
Dysplasia Group/IUGR Russell Silver Syndrome/Growth Hormone
Insufficiency/SOTOS Syndrome and PSM.
Children's Legal Centre is a unique, independent national charity
concerned with law and policy affecting children and young people.
The Centre opened in 1981 as the major UK project for the International
Year of the Child, and is staffed by barristers, solicitors
and professionals with expertise in child law.
Citizens Advice Bureau Service offers free, confidential, impartial
and independent advice.
offers advice, information and support to carers and professionals
associated with metabolic disease.
help and advice for families caring for children with any type
of disability or illness; aims to link families together and
encourage mutual support between parents/carers; has contact
names/addresses of specific syndrome groups and local self help
For Disabled Children
Council for Disabled Children is an independently elected, multidisciplinary
consortium operating under the aegis of the National Children's
is a nationwide support group of teachers and parents/carers
of deaf children, providing support, information and advice
to guide parents/carers in helping their children develop normal
speech and to live independently within a hearing society. There
are regional branches which hold regular meetings and events
DELTA also runs conferences and courses for professionals, parents/carers
and families, including summer schools for parents/carers with
hearing-impaired children - while the children enjoy themselves,
their parents/carers attend lectures, workshops and discussion
charity supported by regional groups; also provides regional
events and projects for children with diabetes and their parents/carers.
UK is the national organisation for the DIAL network - 140 Disability
advice centres run by and for people with disabilities. DIALs
give free, independent advice on all aspects of disability over
the telephone and in drop-in centres: many can arrange to visit
less mobile clients in their own homes. As the national organisation
for the Network, DIAL UK promotes the interests and usage of
disability advice centres controlled by disabled people and
provides information and support services to DIALs and to other
disability information providers.
Alliance is committed to breaking the link between poverty and
disability by providing information to disabled people about
their entitlements and campaigning for improvements to the social
security system and for increases in disability benefits so
that they better reflect the real costs of disability.
Challengers provides essential leisure, play and learning experiences
for young people with any kind of physical, learning or emotional
DLF is a national charity that provides information and advice
on disability equipment to help solve the day to day problems
that arise through living with a disability.
Parents Network (DPN) is a national organisation of and for
disabled people who are parents or who hope to become parents,
and their families, friends and supporters.
Disability Rights Commission (DRC) is an independent body, established
by Act of Parliament to eliminate discrimination against disabled
people and promote equality of opportunity.
information support and advice on all aspects of the condition.
out assessments, teaching and teacher training. Dedicated to
successful learning for dyslexic people. Information and advice
advice, information, support, professional and parental conferences
and much more.
and information for people suffering from anorexia, bulimia
and their families. Membership, information and local help,
including self help groups.
Opportunities For People With Disabilities
UK charity working directly with people with a wide range of
disabilities to help them find and retain work. Employment Opportunities
seeks to persuade others to positively recognise ability and
potential. We have a network of Regional centres offering practical
help with training and advice on job searches, CVs, application
forms and interviews. Many of Employment Opportunities' staff
have personal experience of disability in employment. Work closely
with employers, the Employment Service and other charities.
Also offer advice and support to the business sector.
Support Group is a national charity established in 1994, in
response to the overwhelming lack of information on encephalitis
for people affected by the condition and their need for mutual
support in coming to terms with its consequences.
group offering advice and support to families affected by Erb's
Family Fund Trust
purpose of Family Fund Trust is to ease the stress on families
who care for severely disabled children under 16, by providing
grants and information related to the care of the child. The
Trust is an independent organisation registered as a charity
and funded by the government administrations of England, Northern
Ireland, Scotland and Wales. Grants given include washing machines,
holidays, leisure activities, driving lessons, bedding, clothing
and other items related to the care of the child.
is the beta site for the new 4YOU search engine. 4YOU provides
useful information about clubs, voluntary groups, out of school
provisions and more within Hillingdon and nationally.
is the leading support organisation for lone parent families
in England and Wales, UK.
- The Brain Injury Association
exists to promote understanding of all aspects of head injury
and to provide information, support and services to people with
head injury, their families and carers. There are over 110 local
groups around the UK. Over 50 run Headway House day care centres.
Contact details of the local groups are available from Central
Office where we can also provide straightforward information
on many aspects of head injury.
Arkell Dyslexia Centre
assessments, specialist tuition, speech and language therapy,
support of adults, other support services, computer services,
services to schools, professional development for teachers,
conferences, courses for students, library and resources, bookshop
and mail order, bursaries.
supports young adults/children with hemiplegia and their families.
Free membership for families and professionals. HemiHelp runs
a telephone helpline, produces factsheets and newsletters, runs
workshops and activity days and has produced an informative
and entertaining video for 8-14 year olds.
Hillingdon Community wide web site was created to provide a
single point of contact to the public to access information
about local services, and to facilitate public participation
in the design and running of local services. In order to address
the need for detail information the Hillingdon Community wide
web site will closely be linked to the partner organisations
course of preparation is provided in-house to all Home-Start
volunteers before they are matched with a family.
in 1971 with aims of promoting research, relief and treatment;
disseminating knowledge about the disease; providing information,
comfort and support (including financial support when appropriate)
to families and associated professionals.
Children's Support Group
information and support to parents/carers and professionals
who have concerns for a child or children they consider to be
hyperactive, ADD/ADHD, autistic, Allergic and Dyslexic. Offer
is the national educational charity for children with speech
and language difficulties.
Syndrome is a perceptual disorder that affects 12% of the general
population but up to 50% of those with dyslexia, ADD, ADHD,
ASD and learning difficulties; Irlen Syndrome causes perceptual
distortions of print and the environment, light sensitivity,
eyestrain, headaches, migraine, depth perception difficulties;
it is treated with precision tinted filters worn as glasses;
the colours are specific to each individual and are determined
following a detailed and thorough diagnostic assessment of the
symptoms and of the colours needed; there is a wealth of research
including double blind masked placebo controlled studies showing
the efficacy of the Irlen Method.
Independent Panel for Special Education Advice
is a volunteer-based organisation and many of the volunteers
providing telephone advice and support at Tribunals are themselves
parents of children with special educational needs who have
been helped by IPSEA in the past.
ABA school for autistic children. The trust is the charity supporting
and running the school.
mutual help organisation dealing with facial disfigurement;
dedicated to helping those who are facially disfigured, their
family and professionals who care for them; to understand and
solve problems of living with this disability.
CARE was initially founded by a group of parents/carers whose
children had suffered from leukaemia. In addition to the support
and friendship this created, they also wished to extend this
to other leukaemia patients and sufferers in a similar position.
Membership was extended to include adults and their families
in order to provide a better service to patients including those
suffering from allied blood disorders.
Borough of Hillingdon
is the official site of the London Borough of Hillingdon.
aim to settle disagreements that arise between parents and local
education authorities / schools about the special educational
needs of children and how best to meet these needs.
ME Association supports and informs all people involved with
and interested in myalgic encephalopathy.
Mental Health Foundation
Mental Health Foundation, incorporating the Foundation for People
with Learning Disabilities, is the UK's leading charity working
for the needs of people with mental health problems and those
with learning disabilities.
is a registered UK charity, which helps disabled people become
more mobile. They help disabled people use their Higher Rate
Mobility Component of their Disability Living Allowance (DLA)
or War Pensioners' Mobility Supplement (WPMS) to lease or buy
a car or buy a powered wheelchair or scooter.
advice, guidance and learning materials in different languages.
research into treatments and cures for the muscular dystrophies
and allied muscle wasting conditions. Supports adults and children
affected with expert clinical care, counselling and grants towards
Association For Gifted Children
Association For The Education Of Sick Children
week course OCR accreditation as on-line tutor (approx. 30 hours
Association Of Toy & Leisure Libraries
libraries loan carefully chosen, good quality toys to families
with young children; some provide special toys and equipment
for children with special needs; a befriending, supportive service
to parents/carers and other carers. For list of publications
please contact above.
National Asthma Campaign is the independent UK charity dedicated
to conquering asthma. It funds asthma research, offers help
and advice and campaigns for a better deal for people with asthma.
National Autistic Society
National Autistic Society exists to champion the rights and
interests of all people with autism and to ensure that they
and their families receive quality services appropriate to their
needs. It has developed a range of educational and support services;
runs schools and adult centres; offers families and carers information,
advice and support; works to improve awareness of autism; offers
a diagnostic and assessment service and provides training and
Action for Children
improves the lives of the UK's most vulnerable children and
young people by offering them diverse, innovative and responsive
services and by campaigning for change.
Blind Children's Society
mission is to help blind and partially sighted children and
young peole to achieve their recriational and educational goals.
Deaf Children's Society
NDCS is an organisation of families, parents/carers and carers
which exists to enable deaf children and young people to maximise
their skills and abilities and works to facilitate this process
by every possible means.
Portage Association aims to work with families to help them
develop a quality of life and experience for themselves and
their young children in which they can learn together, play
together, participate and be included in their community in
their own right.
Pyramid Trust For Children
National Pyramid Trust offers a screening process for use in
primary schools to identify children with emotional and social
problems. Suitable children then attend an after school club
run by trained volunteers.
81 offers practical help and support to parents/carers throughout
all stages of assessment and statementing as outlined in the
Education Act 1996. Our national helpline offers and individual
service linked to a national network of local contacts. We can
also offer advice and information on the organisation of assessment
in schools and give guidelines on how to choose a school.
Parent Centre is for all parents and carers who want to help
their child or children to learn. It is here to offer you support,
information and advice about your child's learning and the English
helping parents/carers so that their disabled children can learn,
make friends and have a voice in ordinary school and throughout
life. Aims to help parents/carers whose children are said to
have special educational needs to get the support their children
need in mainstream schools.
to help parents/carers, children and employers by helping parents/carers
combine their work commitments and home responsibilities.
practical advice and help to carers of those with Prader-Willi
Syndrome and people with PWS.
Disability Information Services
confidential, independent information service on all aspects
of disability for disabled people, their carers and service
providers, aimed particularly at those living and working in
Hillingdon. Covers all disabilities and age groups.
Radar promotes the equality of rights and obligations throughout
society. It works to enable people with any disability to control
their own lives and enjoy to the full the opportunities which
society, the economy and the environment provide.
Special Education Advice Line
helpline offering advice and support to parents/carers with
children with special educational needs, helping them gain for
their children an education appropriate to their potential.
Areas of help: school admissions, school stages, statementing
(and statement analysis), tribunals and appeals, bullying.
Royal National Institute for Deaf People (RNID) is the largest
charity representing the 8.7 million deaf and hard of hearing
people in the UK. As a membership charity, we aim to achieve
a radically better quality of life for deaf and hard of hearing
people. We do this by campaigning and lobbying vigorously, by
raising awareness of deafness and hearing loss, by providing
services and through social medical and technical research.
independent national support group which provides information
on scoliosis and contacts for parents/carers of children who
is a national disability organisation whose focus is people
with cerebral palsy. Scope's aim is that disabled people achieve
equality: a society in which they are involved, and have the
same human and civil rights, as everyone else. Local priorities:
enquiry service offering advice and support to individuals and
to develop opportunities in post-16 education and training for
people with any type of disability.
Educational Needs and Disability Tribunal
whose children have special educational needs can appeal to
the Special Educational Needs & Disability Tribunal against
decisions made by local education authorities (LEAs) in England
and Wales about their children's education.
special needs guides in other languages - Bengali, Chinese,
Gujerat, Greek, Hindi, Punjabi, turkish, Urdu and Vietnamese.
Arabic, Kurdish and Somali
versions are available as downloads.
Children's Society works with and for children to help them
deal with life's harshest challenges and face the future with
Sunflower Trust provides a unique approach to improve the health,
success, performance and self-esteem of children with learning
people with tuberous sclerosis and their families or carers.
Promotes education, publicity and information to increase awareness
and understanding. Encourages and sponsors research into the
causes and management of tuberous sclerosis.
And Multiple Births Association
Twins and Multiple Births Association (Tamba) aims to provide
information and mutual support networks for families of twins,
triplets and more highlighting their unique needs to all involved
with their care.
and objectives of the society: The relief of persons suffering
from Thalassaemia. The promotion and co-ordination of research
in connection with Thalassaemia. To educate people on the problems
of Thalassaemia. Lectures with the aid of slides and/or video
films in order to explain Thalassaemia in simple language to
any group of people who wish to learn about it. To offer counselling
to sufferers and carriers. To bring together patients, families
and well-wishers to exchange ideas and information. To raise
by any legal means the funds required for the above activities.
Organisation of dinner/dances, sponsored activities, jumble
sales, auctions, etc. Also receive donations from private individuals.
Minds is the national charity committed to improving the mental
health of all children and young people.